Date: Friday 20th September 2019
Venue: The Bridgewood Manor Hotel, Nr Bluebell Hill, Walderslade Woods, Chatham, Kent ME5 5AX
Time: 9.00am – 4.30pm
Guest Speakers:
Rohit Shankar
Dr Rohit Shankar MBE, FRCPsych is a Consultant Developmental Neuropsychiatrist and clinical director for the adult Intellectual Disability Neuropsychiatry services for Cornwall Partnership NHS Foundation Trust. He is an Hon. Clinical Associate Professor (Senior Clinical Lecturer) at Exeter Medical School. He did his MBBS in Coimbatore Medical College followed by post-graduation at the National Institute of Mental Health and Neuroscience (NIMHANS) India. He has over 100 publications, oral and poster presentations in peer reviewed journals and international conferences, chaired three national RCPsych College Reports and contributed to five books.
Dr Shankar's research focus is SUDEP (Sudden Unexpected Death in Epilepsy) and the impact of ID in PWE. He has set up the UK ID AED research register to look at outcomes of AEDs in people with ID which has been adopted by NIHR and is currently running the PIXIE genetic project in Cornwall. He has created the SUDEP and seizure safety checklist (https:// www.sudep.org/checklist) and released EpSMon (https://www.sudep.org/epilepsy-self-monitor) which has positive Cochrane reviews and NHIR systemic technological appraisals and is the world’s first evidence based mobile application for people with epilepsy to monitor their risk. The checklist and app are both part of the UK national epilepsy commissioning toolkit.
Adina Nash
Adina Nash BSc Hons is currently Clinical Nurse Specialist for Epilepsy at The Royal Free NHS Foundation Trust, London.
Adina Has been nursing for the past 30 years inclusive of: Residential Care Home Manager for 5 years in NHS care home for people with LD and epilepsy, 14 years as Community Nurse in Learning Disabilities. 10 years as Clinical Nurse Specialist for Epilepsy at Royal Free Hospital Adina also has 20 years’ experience as a freelance epilepsy consultant.
Jon Spiers
Jon is CEO of Autistica, the UK’s national autism research charity. Under his leadership, Autistica has focused on the research issues that matter to autistic people and families and increased the amount of research it funds by 500%. Jon’s policy work in 2016 around early mortality in autism and community priorities has given the charity an international platform. Jon’s signature issues are ending preventable deaths and reducing mental health burdens in autism, as well as raising autism research up in the agendas of policymakers, funders and service providers.
Short summary of subjects that will be discussed:
Full facts about Epilepsy, including types and prevalence.
Sudden Unexpected Death in Epilepsy (SUDEP) including mortality rates particularly amongst people with Autism and Learning Disabilities
Links between Epilepsy, Autism and other syndromes
Epilepsy Monitoring devices and Management tools
Current treatments and drug therapies and how they work, including future possible treatments
Who should attend? Anyone involved in the care and support of a person with epilepsy, especially those with Autism and/or additional Learning Disabilities – care workers, health professionals, behavioural support personnel, managers, teachers, parents, guardians and advocates
Cost: £95.00 per delegate / £50.00 per delegate if a member of, or parent to a person supported by The Kent Autistic Trust or for every 2 tickets purchased at full price get a third one half price.
*Price includes a full days seminar with morning and afternoon coffees / teas plus lunch This is a unique opportunity to listen to top specialists.
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